Nystagmus (pronounced nis-tag-mus) is a condition that causes uncontrolled, constant rapid movement of the eyes. This movement is likely to cause vision problems. The underlying cause of nystagmus is often neurological, involving how the eye and brain work together to produce vision.
Nystagmus can occur in infants and adults, although the causes may be different. It is a common cause of vision impairment in children, who will benefit from early help and support to make the most of their eyesight. For adults, nystagmus can be a sign of another underlying condition that needs treatment.
You can find more information about the causes, symptoms and treatments of nystagmus on the NHS website.
In this video, Nicky shares her experience of living with nystagmus.
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Nystagmus is the most common type of vision impairment in school-aged children (Source: Nystagmus Network). Children with infantile nystagmus syndrome are often diagnosed at a very young age. Getting advice and support from the start will make all the difference.
Learn more about the services and support we offer for children and young people.
People with nystagmus can have very different experiences, depending on how much their functional vision is affected. However, most people live independent, fulfilling lives with the right support.
If you're an adult living with acquired nystagmus:
At Guide Dogs, we have a wide range of services, both with and without guide dogs, and a team of experts who can work with you to understand your needs and agree on a plan that’s right for you.
The ways we could help you:
Enquire today, so we can help to find solutions that work for you
Please note: Whilst Guide Dogs may be able to suggest various third-party websites which may be able to assist you, those are not endorsed by Guide Dogs. Guide Dogs have no control over those third parties and cannot be held responsible for the accuracy of information and support they can provide or the suitability and quality of any products or services they provide.
In our eye conditions hub, we explore some of the most common conditions and share guidance on their real-life implications, so you can understand more about what living with this condition might mean for you.
Learn about our range of services to support children and young people, helping to provide them with the skills they need to live an independent and active life.